MY EXPERIENCES IN RIPAS
I had a bad asthma attack on 28 February and went into emergency at 11:30pm. After several nebulizers, blood investigations, chest x-ray & injection, at 6+pm, I was told by the Doctor that I had to be admitted to Ward 16 to rule out H1N1 as the primary cause of my acute attack.
While in Ward 16 and Ward 4, I had the following experiences.
• 28 February after admitted to W16, Room 5, 3 (three) doctors came in to see me and prescribe me with medications and one of it was IV hydrocortisone 100mg. I was unable to sleep the whole night and the worst part of it is the whole of the next day (1st March) I was very alert which was bad for me as I needed to rest. Morning of March 1st, a doctor came to see me for less than 5 minutes (like a hit and run). He asked me how I was and I told him that I was having insomnia and feeling down, but before I even finished my sentences, he told me that it’s ok and just walk out the room. I don’t think it was ethical for a Doctor to treat a patient like that and if he was busy and had no time to assess my condition he should have come back later when he was less busy. I assumed he told the nurse to take blood from me but I refused and during lunch time another nurse came in wanting to test for blood sugar and I refused too. I was labeled as a difficult patient in W16. Now, don’t we the patient had the right to refused? The reason I refused was because the Doctor never explained anything to me and just say that I came in for asthma and everything was all right and walk out the room. The Doctor (he never introduced himself) went behind my back and told the nurses to take my blood. I feel that as a patient, I had the right to know what investigation would be done and the doctor should explain things to me and ask permission before proceeding. But not in my case here. They were experimenting on what other investigation and treatment could be given to me as the present treatment was not helping me. I didn’t like the fact that they excluded me from their treatment plan, as I was a human patient and not an exam Question for them to Try and Error. I came to the hospital to get better not to be stressed out by the doctors.
• Ward 16 is an Isolation Ward for H1N1 suspects and positive patients, but the nurses there were coughing. Why are sick nurses working in the Isolation Ward? Don’t they realize that they can pass viruses to their patients?
• 1st March around 2+pm the afternoon shift nurses came into my room and I asked them for hot water. To my surprise, there were no apparatus to boil water. They told me than I will be getting my afternoon tea and that I could ask hot water from the person who served me (RBC) but sad to say they too didn’t have hot water. I was told that I cannot go out of the room because I am under isolation but I was very very thirsty and ran out of water and the nurses don’t even want to give me water. Now what should we do in situation like this? Was it because I was labeled as difficult patient that they just ignore me and don’t want to give me water? Is it ethical for the nurses to behave like that? At 3pm, Two (2) nurses came into my room and one female nurse told me that I have to be shifted to Ward 4 “NOW” because I was H1N1 negative. The best part about this was, afternoon tea was being served and I had not even touched it. They did not even have the courtesy to allow me to finish my tea before kicking me out of that room. They were really rude and inhumane. I can hardly breathe and have to do everything very slowly. Even to repack everything in the room would take time at least 10 – 15 minutes. I ask nicely if they could allow me at least 15-30minutes to pack my things for transfer (I was still having difficulty in breathing and whizzing). The nurse says yes, but in less than 5 minutes a male nurse came in again to check and asked if I have finished packing. I didn’t realize that if they transfer you from Ward to Ward it MUST be done within 5 minutes and the nurses don’t even consider if you have asthma or not. I have very bad asthma and short of breath, so I cannot move fast but the nurses in W16 can’t wait to get rid of me. Is that the way they were taught in the COLLEGE of NURSING or was it because I didn’t allow them to take my blood they were angry with me? I was not DISCHARGE I was not RECOVERING, so what made them think I was fit to sprint? I just want to know why they were doing this to me. I wish that the relevant authority would look into their nurses attitude. Is it ethical for the nurses to threat patients like that?
• I was transferred to Ward 4, Bed 8 on 1st March afternoon. I must say that the nurses in W4 were just the opposite of W16. They were friendly, caring and listen to their patients. I still refuse blood investigations but they respected my decision.
• Thursday, 4 March I had a very bad experience with a foreign Pakistan Doctor that was in Ward 4. In the morning he came and ask, how am I doing and I told him that I don’t feel too good and that my chest was feeling tight. I mentioned that that I felt like I was dying because the ventolin prescribed made me feel worst. I told him that I can only take normal saline nebulizer. He lost his temper and rudely told me off saying that “in the book it is stated that ventolin helps to clear the lung and that what I felt was all in my mind”. I wonder if he realizes that books are written by MAN through try and error too (research) and Doctors are not supposed to only trust books. When I tried explaining to the doctor, he rudely asked me “are you the patient and the doctor now?” I wonder as a doctor, does he realize that different people have different reaction to medications. Was it ethical for a doctor to scream and get angry with their patients in the ward and not listen to patients on feelings of their own body? Does he think that he knows my body better than me? A few minutes later Doctor Luke came, I was crying he listen and understood my situation and took me off all nebulizer and oxygen.
• I don’t understand why the doctors kept me for another four (4) days before discharging me as all my medication was only tablets and my nebulizer was also off. Don’t they realize that I (an auto-immune patient) could catch other viruses or infection that was in the Ward? During that four days I nearly became sick again, I had slight fever, sweating++ and headache so I have to keep taking Panadol to keep the fever off.
• I wonder if Doctors in RIPAS know what is Relapsing Polychondrities (RP) and if they realize that people who have RP have autoimmune disorder and is a high risk patient. The Doctors didn’t want to discharge me and I was in Ward 4 till 8th March. Ward 4 is for patients with chest problems and that could include Tuberculosis as well as influenza AH1N1. So I felt afraid to catch another bug (buy one get one free Virus).
• I was admitted on the 28th February and only 04th March my hospital case note appear. I really wonder what took them so long to get my old case notes.
• I would also like to find out more about “Do Not Resuscitate” (DNR) in Brunei Darussalam. Do we have to inform the Doctors on admission? Because while being admitted I told the Doctor that I am a DNR and he told me nothing will happen to me with a smile. But what happened IF SOMETHING really happened to me? How would the nurses know that I am a DNR?
• The mattress in Ward 4 was so thin that I had bruise all over my back sleeping on it. The mattress was with a cloth like material which made me wonder, how would the nurses clean after a patient gets discharge? Do they actually do dusting after every discharge? The RIPAS bed sheet was also an eye sore. I had a bed sheet with dry blood colored stains that I complained by there were no more bed sheets available.
I would appreciate if the relevant authority in Ministry of Health could look into some, if not all the above mentioned matters and give me an answer thank you.
MRN 46 90 77
This post was submitted by sjy0381.